Back to day one of no seizures. The doctors have loaded Chloe again with more anti-seizure medicine so she has been asleep for most of the day. When she is awake, though, her eyes are big and she enjoys listening to her lullabies or having us read her a story. Chloe continues to do well with her feeding through her tube. She gets fed for an hour, then waits for three hours to get her back to a normal feeding schedule. Unfortunately, she did vomit in the middle of the night after one of her feeds. We are not sure why - she did not cough or gag - but we are watching her carefully. We also keep giving her a taste of milk or sweet water on her bottle nipple and are still hopeful that we can reteach her how to suck. Again, we keep praying that we can avoid another surgery and get our baby Chloe back on track. We know she can do it!
I was able to get a mini break and spend some extra time with Olivia this weekend since we went out to Long Island for Halloween. She had a nice time screaming 'Trick or Treat' and getting candy. And, she had a great time playing with the grandparents, uncles, aunts and cousin. It was nice to give Olivia a break and let her run around and be loud. There were moments, though, where she'd stop to think about Chloe and let me know that she missed her sister. I think this breaks my heart the most. We promised that she will see her tomorrow afterschool.
Continuing to hope and pray...
Many thanks,
Michelle, Rethier, Olivia and Chloe
besides praying, is there anything that we can do for you guys? :(
ReplyDeletehey family its derica here just stOpping by tO say hellO tO yOu & miss chOle....she`s always On my mind <3
ReplyDelete