The roller coaster ride continues...
Earlier this afternoon the neurology team recommended Chloe’s anti-seizure medication (Dilantin) stopped because the videos and her EEG's showed no signs of seizure activity. Unfortunately, they are now recommending that she keep the EEG monitor for another 24 hours. At 10pm, I received the news from the pediatric resident that the neurologist who reviews EEG's of Chloe called and alerted her that Chloe actually had three sub-clinical seizures prior to her Dilantin being stopped. These seizures are not seen by the eye but are picked up on her monitor. It is frustrating because the person reviewing the EEG's cannot say when these seizures happened or their duration. We're very confused right now. We are getting two different reports from two different people. So of course we now question every little arm movement or eye twitch as some type of seizure activity. We are awaiting the neurology team to round in the morning to answer the question of whether or not Chloe is still having seizures.
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