We finally have an answer as to whether or not Chloe was having more seizures. According to the neurology team Chloe did have three small seizures under a minute in length. The discontinuation of her anti-seizure medication (Dilantin) did not have any effect on these seizures as the level on the medication was sub-therapeutic. So for now, Chloe remains on her phenobarbital IV medication to quiet any seizure activity.
On a much lighter note, Michelle was able to hold Chloe today! Michelle held her for an hour as Chloe slept in her arms. She has been doing well on and off her CPAP machine that helps her breathe. Chloe has been running a low grade fever for most of the day which the team is watching closely. The team is still unsure why Chloe continues to spike fevers but we are all working to find out its source.
Dear Rethier and Michelle
ReplyDeleteWishing you both well in this trying time. Know that Chloe has lots of prayers going out for her and for your family. With Love and Prayers, Elaine