Our brave little girl's fight with bacterial meningitis and the challenges she faces. This is her journey and our family's story of strength, patience, and love.
Friday, October 30, 2009
October 30 - 22 days
An uneventful day is a good day! Each day, Chloe looks more and more like herself. Those of you who have been looking at Chloe's pictures, today's photo was taken the Sunday before we were admitted when we took the girls to Central Park Zoo for a special family outing.
Chloe seems to be reacting well to the new mixture of anti-seizure medicine and has been seizure free since yesterday morning. She is also fever free for 3 days now!! Her movements have calmed down a bit and seem to be a bit more controlled. Before, Chloe would move her arm and leg (mostly her left side) continuously and it seemed a bit involuntary. The neurologists told us that it sometimes happens with the brain damage that has occurred. Over the past two days, though, we have seen movements on both sides to be much more purposeful. We continue with her physical and occupational therapy to make sure that her muscles are being exercised and to reorient Chloe to parts of her body. We have also begun our speech and swallow therapy. Unfortunately, our chunky monkey who loved to eat and drink has some trouble with her sucking reflex so we are working together to strengthen her muscles again and hope that she will not need a feeding tube in the end.
We pray that Chloe will continue to progress and we will begin touring inpatient rehabilitation centers over the next week to prepare for the next adventure. The faster we can begin her rehab, the stronger she will be so we keep moving forward baby step by baby step.
Many thanks for all your support,
Rethier, Michelle, Olivia and Chloe
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let's continue that fever free streak chloe! we're very proud of you, keep getting better and stronger! God bless you.
ReplyDeletelove,
g, christine,
sam, syd and sky
Happy First Halloween, Chloe! Keep fighting through this, little girl, we love you.
ReplyDeletelove,
Rebecca and Kabir
Great job Chloe! I am very proud of you. Happy Halloween,
ReplyDeleteLove
Auntie Jaime