Fevers!! We just can't seem to get a handle on how to control/treat Chloe's recurrent fevers. She ran as hot as 103 this morning and we were informed by the neurology team that she experienced more sub-clinical seizures during her fever for roughly 1.5 hours, off and on. As you can imagine, Chloe slept for most of the day after a morning like that. They increased her anti-seizure medications and added an extra dose of Ativan (another anti-seizure med) which I'm sure played a part in her sleeping as well. The team now has a plan in place that once her temperature hits 100 degrees she will receive Tylenol. No more waiting until she hits 101 before treating.
Now here's the twist... At 5pm - For the first time since her hospitalization, I (daddy) was able to hold her for about 30 minutes and she did really well. I of course loved it! Once we placed her back in bed, the nurse checked her temperature and it was 95 degrees!!! Vital signs were totally normal and she was not in any distress. We rechecked her temperature and got the same result... Absolutely crazy - and our roller coaster continues.
We continue to Pray for her daily!! What a great story about that Daddy time. She feels the Love!! We are rootin' for you and Michelle to stay strong. We continue to think about your family. Cuz'n Andrew & Ruchelle (Brennan & Cale, too!)
ReplyDeleteWe are praying for beautiful Chloe and thinking of your family! We just found out that she is ill and our hoping for a speedy recovery.
ReplyDeleteWith all our warmest, best wishes, Nick, Kim, Tessa and James