We received results this afternoon from Chloe's morning CT scan. Unfortunately, the size of the ventricles in her brain had not come down in size since her surgery. Quite opposite, it has increased slightly in size causing slight pressure on her brain. It's difficult to get an actual picture of what precisely is going on as we hear differing opinions throughout the day.
As of yesterdays post we thought we were 3 days without seizure activity but were told today that she did have two more seizures yesterday afternoon which we are only hearing about now. Not exactly the news we were hoping to hear. The team is now deciding whether or not to convert her external tube draining excess fluid from her brain to a permanent internal one. If they should place the permanent drain, her surgery will be early this week.
Today has been somewhat of a setback but we remain positive that Chloe will push through this. She has shown us such amazing strength so far and know that she will put up a fight.
As for Olivia, she has been visiting Chloe everyday since last Thursday and has been the best big sister. She looks over Chloe's bedside and blows her kisses, sings to her over the phone before she goes to bed, visits the nurses and doctors around the unit and entertains them with her nursery songs, and reminds everyone to pray for Chloe. She still asks for her sister every night and every morning and it is hard for us to explain to her why she is not home to play. We miss the mornings and nights watching Olivia dance for or read to Chloe while lil' sis smiled and looked at her big sis in awe but know that those days will be back again, hopefully soon.
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